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The Waiting List

An Introduction to Medicaid Waivers (and the Waiting Lists that Go Hand in Hand)

This post is part of an educational series exploring Medicaid waivers and the challenges people with I/DD face when trying to secure Medicaid funding for home and community-based care. The Waiting List, Part 1 serves as a primer. 

To live meaningful lives outside of institutional settings, many people with intellectual and developmental disabilities (I/DD)...Read more

We're stumbling around in the dark.

Part of my regular routine includes learning about and sharing what’s going on in the field of intellectual and developmental disabilities, so I can lead Mosaic and support people with intellectual disabilities well.

Last month, a colleague forwarded me the following series, which does a great job of digging into some of the issues people with intellectual and developmental disabilities, their families, providers and...Read more

Medicaid is a lifeline for people with disabilities in Iowa and around the nation

Late last week, The Des Moines Register ran an article about a young man named Louis, whose health care services were drastically cut with little notice, and it broke my heart.

According to the article, Louis has severe disabilities...Read more

Tell your Senator: Vote no on cuts and caps to Medicaid.

The Senate voted earlier today to begin the process of repealing and replacing the Affordable Care Act with the American Health Care Act (AHCA). Although the bill put forward was the AHCA, we have no idea what the bill will look like when it gets out of the debate and amendment process.  

Legislation that...Read more

Thank you for supporting people like Chris and Janey Grimm.

Yesterday was a great victory for the 3,700 people Mosaic supports, their families, communities and our country. 

Last night, Republican Leadership pulled the Better Care and Reconciliation Act from consideration. This bill would have drastically restructured Medicaid, putting millions of people with disabilities and countless others at risk.

It couldn’t have happened without your fierce support and advocacy....Read more

Staying active helps keep hope alive.

Please keep calling your U.S. Senators and telling them the proposed health legislation is bad for people with disabilities.

Advocates have been on a journey since January to protect the integrity of Medicaid for people with intellectual disabilities.

Working toward any goal is a journey of ups and downs,...Read more

Jan Hogan and her sister Carrie

Don’t get mad. Take action.

I learned that piece of wisdom years ago and it still rings true, especially in light of recent developments in Washington regarding health care.

In May, the House of Representatives passed the American Health Care Act, which would devastate the lives of people with disabilities by cutting Medicaid funding. Last week the Senate version was released, the Better Care Reconciliation Act. It’s even worse....Read more

Advocacy is important. Even if your side loses, it still matters.

Last week, I spent time with other advocates at Nebraska’s state capitol, working to override the governor’s veto of valuable funding for people with...Read more

Earlier today members of the House of Representatives voted to pass the American Health Care Act. If passed by the Senate, this bill could have devastating consequences for millions of people with intellectual disabilities and other vulnerable people.

We are incredibly disappointed with the vote, but know our advocacy must continue.

This bill cuts more than $800 billion dollars from Medicaid, removes guarantees that people who need support will get it and jeopardizes the health and safety of millions of people in the United States.

We’re incredibly...Read more

Forty-two days.

That’s how many days it’s been since the American Health Care Act (AHCA) was introduced.

Despite a failed attempt to pass the bill a few weeks ago, the AHCA is still being negotiated behind closed doors in Congress. The proposals being discussed would likely erode health care and long-term care protections for people with intellectual disabilities and transform Medicaid from a guaranteed funding stream to a capped program.

It’s incredible to think that a bill that...Read more


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